Shared Lives carers ensure dignity during end of life care

All week we are highlighting the national Dying Matters Awareness Week. We recently spoke with Shared Lives carer Charlotte Hall of Kirkburton, who, along with her husband offer long term and respite care.

Here they share their very recent experience of end of life care.

Meet Shared Lives carers Charlotte and Damian Hall

They have both been Shared Lives carers for over 5 years welcoming Tracey, age 50 and John, 60, into their home both of whom have differing learning disabilities. They also offer respite support to other Shared Lives service users and their carers.

Over the years, they have helped Tracey and John live as independently as they can helping them achieve their goals and dreams.

Unfortunately, Tracey recently suffered a seizure and was discovered to have a tumour on the brain, she needed end of life support.  With the help of the Shared Lives team at Kirklees Council, Charlotte and Damian were able to access the right health services and professionals.

Working together

Together carers, health professionals and the Shared Lives teams worked together and, in a co-ordinated approach, helped to put a care plan in place, specifically designed for Tracey taking into consideration her existing disabilities and the effects of the brain tumour.  With the plan in place, Tracey was able to stay at home longer, where she was surrounded by people that cared for her and in familiar surroundings.

Charlotte said:

“Tracey was so active, she enjoyed dancing, swimming, jigsaws, cycling and watching my husband in the brass band.  The hardest thing at the moment is that we can’t visit Tracey in the home because of lockdown. She’s part of our family we miss her and so does John.”

Following a number of weeks of care in her Shared Lives placement, Tracey was moved to a residential home where she receives specialised care and treatment.

Become a Shared Lives Carer

To find out more about Kirklees Shared Lives and to become a carer with the scheme visit Shared Lives or call 01484 221000.



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